I've been thinking a lot about this, since a conversation with Mum yesterday (or was it Saturday?).
We were talking about Sue. Now Sue, at 43 years of age, and if she lives to a fair age, faces another 20+ years of living in the state she is in now, only deteriorating, as they see no signs or liklihood of remission.
She will continue to need to have her underwear changed (well, for underwear, read tenapads) because she will never again have control of her bladder or bowels. It isn't anything like me changing Rachel, because one day Rachel will learn to use the toilet. Sue will never have that skill again.
She will never regain her eyesight. She will only ever see blurs and colours, and will never see the faces of my children, me or our parents. She can't watch TV. She can't read a book. Reading books was her greatest love.
She still knows Mum & Dad, but rarely asks after me, and although she knows I have children, she doesn't remember their names, ages or sexes. She doesn't know she is an aunty three times over, and although she was enthralled by Rachel, she didn't really 'understand' Rachel. I am sure she doesn't remember Gerry at all.
She doesn't remember Miki, except as a vague recollection of a man in her life that she lived with. The years of their marriage are gone. Fortunately, she doesn't remember Raymond The Bastard either. Thank god for small mercies!
She has no concept of time. To her, yesterday is the same as this morning is the same as last week. Again, a blessing I suppose. Imagine knowing this is what you were faced with for the rest of your life ... however long that may be.
A long time ago, she and I were talking, and we both agreed that to live as she is living now would be a living hell. We both said we would prefer to be put out of our misery. But is she in misery? Is she truly, now, the infantile, drooling wreck her body shows her to be? Or she in there, somewhere, screaming to get out?
God, I hope she doesn't know.