That is the end of my tether that you can see.
Sister Mum got fed up waiting for her letter and phoned to see what the story was. She phoned the woman who does the assessment and the recommendations to the panel. The woman was really cross about the phone call Mum received the other day - apparently nothing is finalised yet and the woman had no right to call Mum ... I think the words 'well out of order' and 'disciplinary' were mentioned.
Anyway, apparently Suze isn't getting chucked out of her home. The difficulty is in-fighting between the NHS Trust and the social services (which I thought was the same thing but apparently they are different departments with different budgets) about who is paying what for her. She has just hit bottom on personal funds - she is allowed a certain amount before she stops paying part of her own bill and that moment is now. Mum is hoping they are going to move her back to the place she was in before they decided she needed all these extras (that cost hundreds more and aren't doing her any good anyway).
MIL is still battling on. She had another 2 units the day before yesterday. Apparently the 6 units she had before lasted 16 days. We went to see her yesterday. She is half the size she was the last time I saw her, I am sure. The priest came in to give her the last rites (although they call it something else - anointing? - something anyway). It was hard. I'm not going into detail, obviously, because it is too personal, but - oh, man - it was so hard.
Lala The senior consultant phoned me from the hospital this afternoon with the results from Lala's blood test. Apparently the antibodies are there, so she has to go in for a biopsy. I know it is a big decision to make - she is only 4 years old, and I hate to think of her going thru all this, getting a general anaesthetic. They don't do a general for adults, but kids won't sit still for a colonic biopsy. Mind you - neither would I!
I have a sort of pain in my chest. A kind of breathlessness. I keep shaking, I'm not sleeping, and have no appetite (although I'm comfort eating - go figure).








